“I wish I didn’t have AFib… it would be nice. And, at the same time, I recognize that some of the positive decisions I’ve made in my life have been influenced by the insight that comes when you have a heart condition.” Ann-Marie began experiencing atrial fibrillation (AFib) symptoms at a young age. “I was 42 years old, and I happened to be at my family doctor’s office for an appointment for one of my daughters who was sick. I had previously talked to the doctor about something funny with my heart rhythm, but it was episodic. Because it wasn’t happening while I was there, she didn’t want to send me for an ECG. While at my daughter’s appointment, I said, “Remember when I talked to you about this heart rhythm thing? It’s off now.” She sent me downstairs in the building for an ECG right away, and sure enough, I was in AFib. That’s where it began, and it was real. At first, I was in shock. I was 42, and what do you mean I have a heart condition? It just seemed like I was way too young and physically active. I had two busy kids, a great...
“I became fascinated by the heart when I was 13 years old as a volunteer with the Red Cross. When I began to look for paid employment, nursing was big, so I went that route… and that’s where it led me for 30 years until my heart attack.” From cardiac nurse to cardiac patient, Kevin could predict that he, like his patients, would forge his path through cardiac care. “My journey started in March 2007 with a heart attack at age 47. I was fairly young, but it wasn’t unexpected because of my family’s genetics. I look like the men on my mum’s side of the family. I’ve got an uncle and a cousin, who, when we were together, people used to think we were father and sons. My mum had three brothers, two of which died of cardiac-related illnesses. One died of a massive heart attack at 52, and the second died of cardiac disease after a long battle that included several stents and a couple of bypass surgeries. The same weekend I had my heart attack; my father was dying in England from his battle with cardiac disease. He had his first heart attack at age 52 and...
A few days before CANet spoke to Diane Strachan, she had just finished a 3600-kilometre trip across Ontario on her motorbike. This would have been an insurmountable task a few years ago for her. "When I was first diagnosed with arrhythmia, I thought I would have to sell my bike," Diane - an avid biker - recalls. Between medication, fear, and not knowing what to do or expect to lead a normal life?
In his experience, CANet Patient Partner Hugh Winsor believes that patients need to combine their own lived experiences with a wider understanding of the cardiology and science involved in the proposed investigation. Only then can patients fairly assess the potential patient benefit from any proposed study.
CANet Patient Partner and Trainee Danaka Porter, recalls her history with supraventricular tachycardia (SVT) and how she leveraged that experience and unique understanding into her current role, amongst many other accomplishments, as PhD Candidate, Cardiology.
